murphyormel

wacky reflections from a nutcracker wannabe

Category: Consumer Behavior

Be very clear, ALS, we have Pocket Larry’s back.

A short acronym. A difficult enunciation. A devastating disease.

And today there is no cure.

Thing is, ALS, Larry’s friends and family are not ok with this disease. We want you stopped. And so an energetic and intense support network is in place to see that Larry’s impact on the world of ALS is not just a fight. It is a growing campaign that in fact mirrors Larry’s own uniqueness.  Love, spirit, prayer, kindness, generosity, silliness, strength, a dad’s wisdom, and some bad-ass marketing, public relations and merchandising talent!

Get ready, ALS, as Larry’s squad of support….throws the chair at you (http://webstl.alsa.org/goto/walk4larry), outruns you 12 times over (half-marathons, no less)**, and ensures folks across all social media platforms know we have his back.

I was lucky enough to have Larry as a senior supervisor roughly five years ago. He smiled at me in that first week, and I knew I had wisdom awaiting me. He called us “Mishpocha”, meaning family in Yiddish, and I would venture I wasn’t the only one who knew his sincerity in that word. He could be overtly stern or even powerfully silent, but I do not recall a time when there wasn’t a follow-up about what lesson could be learned. He was always however quick to compliment and praise when he saw hard work and dedication, and he never missed a teaching moment.

Wisdom simply follows this wonderful man.  And as such, people choose to follow him.

When my cancer diagnosis came as a surprise one year after knowing Larry, I started this blog. Initially, it was just easier to tell the story one time to 100+ people, rather than 1:1, 100 times. In week one; however, Larry signed on to join my journey via the blog, and sent me private notes, prayers and love along the way….it’s been four years, and we no longer work in the same place, but I am pretty certain there are NO more than 10 people in this whole world that have read every single one of my 65+ posts.  I suspect Larry is one of those 10.

I am one person in a sea of people he has touched. I can’t imagine a finer mentor and adopted grandpa and/or dad than Larry is to many like me. Likely, many of us not even knowing he was mentoring so many of us at the same time. Likely, he not knowing how many of us saw him as such.

You are a gift, my friend. Taking a pocket-size version of you on a journey these last 10 days has been an honor. Cheers to raising awareness, funds and a cure.

So again, I repeat.  Be clear, ALS!  Pocket Larry is indeed an original, and we have his back.

love and light,

Mel

On June 27, 2015 the St. Louis Walk to Defeat ALS is being held in Forest Park. Please join the team to support our friend, Larry Tyler.

#PocketLarry #outrunningALS #ALSWalkSTL

https://www.facebook.com/groups/walk4larry/

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neuro-degenerative disease that affects nerve cells in the brain and the spinal cord.

A-myo-trophic comes from the Greek language. “A” means no or negative. “Myo” refers to muscle, and “Trophic” means nourishment-“No muscle nourishment.” When a muscle has no nourishment, it “atrophies” or wastes away. “Lateral” identifies the areas in a person’s spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening (“sclerosis”) in the region.*

* http://www.alsa.org/about-als/what-is-als.html

** https://www.facebook.com/outrunningALS?fref=ts, outrunningals.com

reading glasses do not alter curious observation.

curiosity killed the cat.

  • What the hell does that even mean?*
  • Why is the first time your teenager tells you, “you are the worst mom, ever”, your therapist tells you, “congratulations, this is healthy development and a necessary separation for her growth”?
  • How is possible to be terrified and excited at the same time?
  • How is gray hair a sign of wisdom?
  • Why does “doing the right thing” sometimes hurt so much?
  • Why is learning to breathe a technique?  (And lol, there are many that I teach that DO actually work to either heat up the body or calm.  (Let’s just say Nadi Shodna in traffic looks like I’m picking my nose.))
  • Why does “fake it till you make it” actually work?
  • Why doesn’t the St. Louis Bread Co / Panera Bread market a ‘morning happy hour’ or ‘speed dating’ concept for the 70+ crowd?  I’ve been there with my mom.  She talks to strangers naturally, hugs and touches shoulders of those she doesn’t know well, enjoys the low key coffee and pastries.  It’s perfect.  They talk about their ailments, what cousin’s cousin’s children are married or single while they pass around grand-baby photos with their shared reading glasses. The coffee wraps could be used for collecting phone numbers.
  • Why is being with the people we love the most in the world, and who love us to infinity as well, so darn stressful at a holiday?
  • When did I become the subject of my own teaching on “the dark side of consumerism”?  Yes, binge-watching Netflix newly released, ‘House of Cards’ in one weekend should be a text-book case study.  The a-ha moment in class as I admitted my addiction stunned even me.
  • Why can’t Apple add a photo feature so my male, British speaking Siri is looking at me when he speaks?
  • Why doesn’t the school system allow the parents a choice in our children growing older?  I offer every year, but no.
  • Why is it easier for me to trash the greasy, thick, sloppy, ‘left in sink’ too long pan, than wash?
  • Or better, rerun the dish washer so you can postpone emptying?
  • Why does mouthwash taste so awful?  And for that matter, the prep beverage for a colonoscopy?  Seriously, markete(e)r friends, simple economics…. consumers pay a price to meet a need. Price increases as demand increases.
  • Why did anyone let me buy a condo with a balcony outside my soon-to-be high school blonde beauty’s bed room?  (Probably not appropriate to use Rapunzel and “conceal and carry” in the same sentence. It isn’t like I’m a stranger or ever a saint to the teenage sneak factor.)
  • How can I remember details of a professional contact from five years ago: know their political affiliation, connection to others in my network, what Board positions they hold, recall what school they graduated and know they are cousins with a hottie who has a knack for great jokes, but ………I can’t remember what I made for dinner last night?
  • I have convinced myself grapes with pizza is a meal.  Not really a question but probably should be.
  • Why is laundry, picking up the dog poo, or unloading groceries called a chore for the teenager but it is real life for the parent?  I call it, “You live here, you help, you eat.”
  • St. Murphy struck on St. Patrick’s Day.  Why did my teenager find the container of corn in the microwave 24 hours AFTER it was to be a compliment to our evening meal?

And finally, why DIDN’T my $4K lasik procedure guarantee that BAM, one month after my early 40s birthday, I wouldn’t need these silly readers to make my curious observations?  When I had to wear glasses, I disliked them. Now, I forget they are on my own head.

Cheers to never-ending curiosity,

Mel


* Wikipedia:  Curiosity killed the cat” is a proverb used to warn of the dangers of unnecessary investigation or experimentation. A less frequently seen rejoinder to “curiosity killed the cat” is “, but satisfaction brought it back“.

The corn.

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