murphyormel

wacky reflections from a nutcracker wannabe

Month: April, 2015

Be very clear, ALS, we have Pocket Larry’s back.

A short acronym. A difficult enunciation. A devastating disease.

And today there is no cure.

Thing is, ALS, Larry’s friends and family are not ok with this disease. We want you stopped. And so an energetic and intense support network is in place to see that Larry’s impact on the world of ALS is not just a fight. It is a growing campaign that in fact mirrors Larry’s own uniqueness.  Love, spirit, prayer, kindness, generosity, silliness, strength, a dad’s wisdom, and some bad-ass marketing, public relations and merchandising talent!

Get ready, ALS, as Larry’s squad of support….throws the chair at you (http://webstl.alsa.org/goto/walk4larry), outruns you 12 times over (half-marathons, no less)**, and ensures folks across all social media platforms know we have his back.

I was lucky enough to have Larry as a senior supervisor roughly five years ago. He smiled at me in that first week, and I knew I had wisdom awaiting me. He called us “Mishpocha”, meaning family in Yiddish, and I would venture I wasn’t the only one who knew his sincerity in that word. He could be overtly stern or even powerfully silent, but I do not recall a time when there wasn’t a follow-up about what lesson could be learned. He was always however quick to compliment and praise when he saw hard work and dedication, and he never missed a teaching moment.

Wisdom simply follows this wonderful man.  And as such, people choose to follow him.

When my cancer diagnosis came as a surprise one year after knowing Larry, I started this blog. Initially, it was just easier to tell the story one time to 100+ people, rather than 1:1, 100 times. In week one; however, Larry signed on to join my journey via the blog, and sent me private notes, prayers and love along the way….it’s been four years, and we no longer work in the same place, but I am pretty certain there are NO more than 10 people in this whole world that have read every single one of my 65+ posts.  I suspect Larry is one of those 10.

I am one person in a sea of people he has touched. I can’t imagine a finer mentor and adopted grandpa and/or dad than Larry is to many like me. Likely, many of us not even knowing he was mentoring so many of us at the same time. Likely, he not knowing how many of us saw him as such.

You are a gift, my friend. Taking a pocket-size version of you on a journey these last 10 days has been an honor. Cheers to raising awareness, funds and a cure.

So again, I repeat.  Be clear, ALS!  Pocket Larry is indeed an original, and we have his back.

love and light,

Mel

On June 27, 2015 the St. Louis Walk to Defeat ALS is being held in Forest Park. Please join the team to support our friend, Larry Tyler.

#PocketLarry #outrunningALS #ALSWalkSTL

https://www.facebook.com/groups/walk4larry/

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neuro-degenerative disease that affects nerve cells in the brain and the spinal cord.

A-myo-trophic comes from the Greek language. “A” means no or negative. “Myo” refers to muscle, and “Trophic” means nourishment-“No muscle nourishment.” When a muscle has no nourishment, it “atrophies” or wastes away. “Lateral” identifies the areas in a person’s spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening (“sclerosis”) in the region.*

* http://www.alsa.org/about-als/what-is-als.html

** https://www.facebook.com/outrunningALS?fref=ts, outrunningals.com

Hail to the pink hard hat posse of HSHS St. Elizabeth’s Hospital!

The road has been long, and the winds of change indeed mighty, but my strong, wise friends of St. Elizabeth’s Hospital, your pink hard hats prevail!

Hail to the posse today- this historic day for O’Fallon, IL- as a new replacement hospital for the next 150+ years WILL be built! My sweet hometown will never again be the same. And my own grand-children’s children will too be touched by your magic and mission.

Long before women in the United States could vote (1920) and work (still today only $.77/1.00 to a man’s equal pay), the Sisters of many faith-based sponsors were pioneering organizational change, leading community and caring for those in need with churches, schools and open hearts based on love and faith.  They didn’t win awards, get their own stamp, meet a President, toss the first pitch, or even author a best seller. Many never even saw a paycheck in their own given name, rather it went to the Order and that which it served.

The American Province of the Hospital Sisters of the Third Order of St. Francis, headquartered in Springfield, IL, part of an international, multi-cultural congregation of Franciscan Sisters, was founded on July 2, 1844.  These humble women left their homes and families in Germany in their teens to venture across the world, not for glory but for faith.  They built their hospitals along rail-road tracks, because 140+ years ago, interstates weren’t an option. Supplies, physicians, patients, staff…they traveled via rail.  Not so today. And as things progress to meet our changing lifestyle, so too has medicine, innovation, strategy and structure to support our larger regional community.

Today, these noble women are still leading, making change, caring for the poor and vulnerable, loving each of us, and believing in a future with progressive medicine, enhanced services for those in need, and continued, consistent dedication to the mission: Respect, Care, Competence and Joy.  Still no stamp with their photos, no parades to honor their care or imprint on a region, no moment on a ball field for applause…..just love and families forever touched by illness, birth, death or joy.

The pink hard hat posse of HSHS* St. Elizabeth’s Hospital, and its Southern Division sister HSHS ministries, St. Joseph’s, Highland, St. Joseph’s, Breese and St. Anthony’s Memorial, Effingham, IL, are all feeling the light and love of a higher power today. And I suspect thousands of colleagues across the HSHS system (both past and present) in addition to families touched by their magic, feel the same…..tremendous respect, support, pride and privilege to see St. Elizabeth’s Hospital, take the next step toward a Replacement Regional Medical Center.

Pioneering Sisters. Those clinicians and physicians with the privilege to touch the patient*. And oh so many supporting colleagues who continued their dedication to the mission while concurrently facing both support and (some heated) opposition in grocery store lines, at church, at the backyard barbecue*, at the gym, while getting an oil change, over coffee and a front page headline, restaurants on a weekend, or shopping for a handbag at the mall……all for a project they support, and a hospital they adore. It wasn’t easy, and brand ambassadors inside and outside the hospital walls felt the impact of debate.

I can’t say for certain, but I suspect there were moments along this winding path that were not unlike what it may have been for German speaking Sisters building hospitals in a foreign land against the grain of the time. You all wear the pink hard hat today, my friends. A hard fight but indeed worthwhile and generational! A challenge that did not slow the team, but rather fueled the effort and engaged a larger audience of support. This was ‘a game of chess, not checkers.’*  Moments where there was no choice but to find comfort in the uncomfortable, and believe in one another and the mission…regardless of consequence.

In a 2012 post**, I quoted a senior nurse executive, now, project manager, for this monster project, Super Sue B, “Think from a place of peace, act from intention, do with grace, and you will be ok, no matter the situation.”

Hail to the pink hard hat posse! 1000+++ cups of coffee later, you asked for the order and were given the ‘green’ light. Cheers!

Thanks for making a home town girl and my devoted St. Elizabeth’s fifth generation family incredibly proud of innovation, pioneering spirit and truth to the mission.

prayers of love and light,

Melissa

The executive women of HSHS St. Elizabeth's, 2012  (St. Louis Business Journal)

The executive women of HSHS St. Elizabeth’s, 2012 (St. Louis Business Journal, Belleville News Democrat, p/c: Jim Krohn)

"You must do the thing you think you cannot do."  - Eleanor Roosevelt

“You must do the thing you think you cannot do.” – Eleanor Roosevelt

Pre-press conference nerves...still unknowing we were about to reach 1M+ views in a mere 48 hours.

Pre-press conference nervous energy…still unknowing we were about to reach 1M+ television views in a mere 48 hours.

 

* HSHS (Hospital Sisters Health System), Springfield, IL (HSHS.org, steliz.org, supportsteliz.org)

* Selected quotes from MAR, TR, JB, SB  © 2012-2015

** 2012 post: ‘Never will I be a shrinking violet.’

she said, “so, YOU are the one?” he said, “I am.”

Unlike the slushy toss on Glee, the last few days have felt like a very personal and poetic sprinkle of delicate sparkles showering my family.

When they met as competing percussionists in high level drum corps years ago, she walked up to him and said, “So, YOU are the one?” And he replied, “I am.”  And this was about who was the stronger musician. Not love. Not a lifetime together. Not even who looked cuter in drum corps fashion.

For those who don’t know drum corps, this is hard work, and the best of the best survive. Long days in city after city, sleeping on strange floors while supported by parents and past Corps alum.. in charter buses that drive through the night before the next heated competition to start all over again. The Madison Scouts, Phantom Regiment, Carolina Crown, etc……. it is a fraternity/sorority family of sorts who live, eat, share their lives, compete and travel all over the nation as a family away from home.  And once in, you are in the inner circle of a long-standing tradition of loyalty and prestige.

Candidly, this isn’t for the meek.  You must be tough, strong, confident and talented beyond compare.  (so no, my three weeks of violin in fifth grade wouldn’t have made the cut. 🙂

Now, let me remind you, I am not from a less than high achieving family so for my youngest brother to fall in love with a strong, smart, empowered, independent, talented musician who could take him on both intellectually and musically is not an easy feat. But damn, she has done far more…she won over his heart in addition to exceeding the big sister check-box.

Last Saturday, in front of 8000+ people at the last drum corps competition of their careers, my youngest brother didn’t miss the opportunity to take this strong woman and rock her heart to the core with a bold, romantic, stunning proposal.  Live, on camera, and with hidden microphone, his words, “This is Alyssa, and she is mine. And tonight, this is for real.”*

Within 24 hours, the social media was moving the marketing communications needle to VIRAL and quickly. The power of social media in fact swarmed them……and has been growing for days. This morning early, one of the many You Tube videos alone was over 56K+.  This doesn’t include Instagram, Twitter, Facebook and LinkedIn, all of whom have also felt the impact of this incredibly powerful statement of love, risk and belief in a soul mate.

For me, this is an internal catch between proud big sister and rock star marketing case study! Even as a mom with a 14-year-old, I am terrified of the dark side of social media I know far better than most, but these moments when something so wonderful and loving happens, makes me rethink the WHY of smart brand building, the power of love, the power of people wanting to touch one another, even strangers.

Zachary doesn’t know 50K+ people. And while Alyssa is a wonderful sister-to-be, I suspect she too doesn’t know those over 55K+ people. So why?

Because love touches us. Even those of us still looking and wanting more, are captured by the essence of what can be. And those naysayers well, they too are entitled to their opinion. The best part of this as a case study is that it proves what the best social media marketers already know….never delete a negative. Respond, Fix and/or Refute. A brand ambassador or supporter, more than not, will swoop in to save the brand before the Company (or in this case), Zachary. And they did here too!  Fantastic.

When I was initially diagnosed, I was stunned at the power of a simple blog or Facebook post. I too felt the touch. Strangers, old friends, extended family……wanted to reach me personally/many privately, and tell me their own intimate stories so I wouldn’t feel alone.  And it worked.  Keeps validating we are indeed here to show reflections of the Divine within us!

I teach the dark side of consumerism, but wow- next class, they get a whole new real life experience happening at this very moment. And it isn’t dark in the least. 🙂

We are all blessed to be a part of love spreading its wings far beyond just Zachary and Alyssa. The light of love and kindness surrounds all of us willing to embrace with an open heart.

White lights to each of you touched with the below real life social media love story,

Mel

Proposal only (57K+ today):

Full show: (27K+ today):

“I was daydreaming in Mass and decided you shouldn’t talk in the car.” – daughter

thank goodness we have silliness to offset our vulnerable days.

And yes, we all have our own curious observations, but I feel drawn to pen/paper to share, 1. so my aging brain doesn’t forget, and 2. to validate we are all one in silliness….

– What is the new attraction to emoticons at the end of every text or Instagram post?  I recently found myself downloading very sassy ones (and actually paying $).  Seems like I’ve crossed into addiction.

–  One probably shouldn’t decide MID-tattoo that tipping up-front makes more sense than once the one hour, under the knife experience is complete.

– Why do I repeatedly have to tell my 14-year-old that “leggings are not pants”?  (And don’t judge me as a helicopter mom, my not so baby girl is 5’7″ blonde, blue-eyed, full-lipped, slender and looks about 21!  You too would make her change.)

– Ever notice we put food in a fridge that is magnetic, but we don’t use old style thermometers, because of mercury? (Again, it becomes clear why I’m not the sibling with the PhD in radio-chemistry.)

–  Why is it that those days when you feel a little cloudy or words don’t come as smoothly are always the wrong days?  Teaching last week, I was high on the flaky dial. Words weren’t coming, concepts didn’t land as I like, and I left my phone at home. As I finally had to admit to my class that I was not 100% “on”, one of the students noted my shirt read “Find your center”.

–  Why is it we all just feel smarter in a book store? Don’t even have to read, just drink a coffee and the magic happens.

–  Is it wrong for a mom- in advance of an early “hang out with the new boyfriend”, to give advice on how to french kiss?  No one told me in 8th grade, and Bobby Brown scared the hell out of me with that tongue.  I didn’t want her to be “Bobby Browned”, so I explained the technique, complete with use of the word “retreat” and “engage”.  Sounds a little creepy on paper now that I type this note.

– When my baby was little, I knew I had limited chances to coach a team that required real knowledge, so I signed up to be an asst. coach for 1st and 2nd grade girls soccer.  So, with a “how to” book in hand, work colleagues drawing me drills on cocktail napkins, and a positive attitude, I coached the 1-7 “Pee Wee Fireflies”.  No, we weren’t the winningest team, but I’m confident I received more hugs than EVERY other team with a dad coach.  Moms, go for it!

– What’s up with this bizarre magnetic connection to our phones?  Remember those strings grandma tied on your mittens through your coat sleeves?  Last night, my daughter came home to tell me she lost $20 in change from dinner at the mall, so when I asked if she had her phone, she said, “of course”.  Magnetic connection to a phone but not money?

–  Why is a pile of completed books on my nightstand an accomplishment, but I never once took a photo of the 30+ bags of leaves I raked every year for years when I owned my last home?

– Holy Thursday Mass: “I was daydreaming in Mass and decided you shouldn’t talk in the car when we pick up (boyfriend).”  Next Day:  “I’ve changed my mind and think you should talk. Here is what you can say….He plays hockey and…….his mom does yoga.”  Day after “date”, “Why did you say that?  If it isn’t on the approved list, please do not say it at all.”

And so my friends, I now know why chauffeurs have a plexiglass shield between themselves and their passengers.

Cheers to moments so curious they can’t help but make you smile….

Mel

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