murphyormel

wacky reflections from a nutcracker wannabe

Category: friendship

Anything happens all the time. 

May you meet Joy in 2016.

May you try new things, laugh a lot, sit in quiet a few minutes each day, kiss someone special, journey toward good health, look inward and remember why you love what you do and who you are beyond a title, make new and loving friends, take silly photos, be creative in your own way, truly hear the beauty of a wind chime telling you a story, read for pleasure, feel grass under your toes, ask for hugs early and often, do the thing you think you cannot do, love who you are today, and never let age trump adventure!

Follow your bliss, be bold, trust a higher power knows us, and be your best self.

…..Because “anything happens all the time.*”

Joy says so too.

Metta and Merry 2016,

Mel


Pixarwikia.com: Meet Disney’s Joy** (Inside Out)

* a favorite movie quote: “This is where I leave you”

Be very clear, ALS, we have Pocket Larry’s back.

A short acronym. A difficult enunciation. A devastating disease.

And today there is no cure.

Thing is, ALS, Larry’s friends and family are not ok with this disease. We want you stopped. And so an energetic and intense support network is in place to see that Larry’s impact on the world of ALS is not just a fight. It is a growing campaign that in fact mirrors Larry’s own uniqueness.  Love, spirit, prayer, kindness, generosity, silliness, strength, a dad’s wisdom, and some bad-ass marketing, public relations and merchandising talent!

Get ready, ALS, as Larry’s squad of support….throws the chair at you (http://webstl.alsa.org/goto/walk4larry), outruns you 12 times over (half-marathons, no less)**, and ensures folks across all social media platforms know we have his back.

I was lucky enough to have Larry as a senior supervisor roughly five years ago. He smiled at me in that first week, and I knew I had wisdom awaiting me. He called us “Mishpocha”, meaning family in Yiddish, and I would venture I wasn’t the only one who knew his sincerity in that word. He could be overtly stern or even powerfully silent, but I do not recall a time when there wasn’t a follow-up about what lesson could be learned. He was always however quick to compliment and praise when he saw hard work and dedication, and he never missed a teaching moment.

Wisdom simply follows this wonderful man.  And as such, people choose to follow him.

When my cancer diagnosis came as a surprise one year after knowing Larry, I started this blog. Initially, it was just easier to tell the story one time to 100+ people, rather than 1:1, 100 times. In week one; however, Larry signed on to join my journey via the blog, and sent me private notes, prayers and love along the way….it’s been four years, and we no longer work in the same place, but I am pretty certain there are NO more than 10 people in this whole world that have read every single one of my 65+ posts.  I suspect Larry is one of those 10.

I am one person in a sea of people he has touched. I can’t imagine a finer mentor and adopted grandpa and/or dad than Larry is to many like me. Likely, many of us not even knowing he was mentoring so many of us at the same time. Likely, he not knowing how many of us saw him as such.

You are a gift, my friend. Taking a pocket-size version of you on a journey these last 10 days has been an honor. Cheers to raising awareness, funds and a cure.

So again, I repeat.  Be clear, ALS!  Pocket Larry is indeed an original, and we have his back.

love and light,

Mel

On June 27, 2015 the St. Louis Walk to Defeat ALS is being held in Forest Park. Please join the team to support our friend, Larry Tyler.

#PocketLarry #outrunningALS #ALSWalkSTL

https://www.facebook.com/groups/walk4larry/

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neuro-degenerative disease that affects nerve cells in the brain and the spinal cord.

A-myo-trophic comes from the Greek language. “A” means no or negative. “Myo” refers to muscle, and “Trophic” means nourishment-“No muscle nourishment.” When a muscle has no nourishment, it “atrophies” or wastes away. “Lateral” identifies the areas in a person’s spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening (“sclerosis”) in the region.*

* http://www.alsa.org/about-als/what-is-als.html

** https://www.facebook.com/outrunningALS?fref=ts, outrunningals.com

I thank you for loving me.

I am privileged to have had many, many wonderful people love me in this life.  Each of those who do today, or have loved me in the past, have been a teacher and gift-giver.  Through tears. Through laughter. Through joy and drama and dress up and sweat.  Through dares of silliness and darkness of hurt. Through meditation and prayer.  So many of you.  I thank you for loving me.

You have sent me silly notes, beautiful flowers, read to me, told me ghost stories and held my hand.  You have dropped off gluten-free goodies at my door or sent inspirational quotes or murphy moments of your own to make me laugh.  You have started dance floors, walked through snow, run through mud, been tattooed, ordered silly drinks, taught me to ride a bike, walked along city streets, traveled all over the globe, skipped along side me, suffered in silence on long drives, or sung loudly to songs only I would like.  You’ve been caught underage with me.  You skipped school with me.  You drove me to the hospital when the diagnosis came and came again….and still again. So many of you. I thank you for loving me.

I am blessed for what each of you have gifted me in growth.  It hasn’t always been easy, and more than a few times, loss has hurt like hell, but I’m stronger and with age, listening closely to each grand lesson.

This sudden strike of hurt parallels the likes of a hurricane.  You know it is coming, and yet, while preparing and seeking cover, the blow is still internally painful and alters the landscape while we ride the wave.  It is just that, interpersonal suffering. But it is only a wave. That blow ends.  And something new gently unfolds.

This is the gift.  The path of our truth and personal landscape comes from each of these wonderful souls along the wave – sometimes blowing in like the strong gusts of wind in a storm.  We ride the wave as the feeling isn’t forever.  It comes and goes.  It ebbs and flows.  It balances us and sometimes tosses us high in the air for that deep-down giggle or sharply drops us as we feel the sting of reality. A reality that forever changes the person we were the day just prior.

Sometimes the strangest and most profound friendships come into our lives when we least expect- for reasons unknown to us.  In fact, we may not even like or remember you at first.  Some friendships dissipate, but they always leave a mark.  These souls may encourage us to want more, to ask for the order, to start or finish something, to begin again, to find our truth, to follow our heart, to change, to let go, to leave when it is right, to help us find courage or beauty we can’t see inside ourselves, to live authentically, to truly know love, to love again, to say thank you, to forgive, to get help, to be a better person or parent or friend.  Perspective from outside of our own head is healthy and a gift, when thoughtfully presented with loving-kindness.

“As I look back on my own yesterdays”, I am honored by the immense amount of love given to me freely and without expectation.  I didn’t always appreciate nor have I always reciprocated that unconditional love in an overt way, but I am indeed grateful for the souls that have and continue to cross my path.

The holes of heartache; however, are never holes for long.  There will be new characters in the plot.  New friends and loves that enrich our experience in this universe and teach us self-awareness as we ride our wave.

Cheers to a new surf board and the ebbs and flows of what is a certain wave called this wonderful life.  I thank you for loving me*.

Mel

* https://www.youtube.com/watch?v=LMG8EVEwdA8 (You Tube, Tenors, “I thank you”)

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