A short acronym. A difficult enunciation. A devastating disease.
And today there is no cure.
Thing is, ALS, Larry’s friends and family are not ok with this disease. We want you stopped. And so an energetic and intense support network is in place to see that Larry’s impact on the world of ALS is not just a fight. It is a growing campaign that in fact mirrors Larry’s own uniqueness. Love, spirit, prayer, kindness, generosity, silliness, strength, a dad’s wisdom, and some bad-ass marketing, public relations and merchandising talent!
Get ready, ALS, as Larry’s squad of support….throws the chair at you (http://webstl.alsa.org/goto/walk4larry), outruns you 12 times over (half-marathons, no less)**, and ensures folks across all social media platforms know we have his back.
I was lucky enough to have Larry as a senior supervisor roughly five years ago. He smiled at me in that first week, and I knew I had wisdom awaiting me. He called us “Mishpocha”, meaning family in Yiddish, and I would venture I wasn’t the only one who knew his sincerity in that word. He could be overtly stern or even powerfully silent, but I do not recall a time when there wasn’t a follow-up about what lesson could be learned. He was always however quick to compliment and praise when he saw hard work and dedication, and he never missed a teaching moment.
Wisdom simply follows this wonderful man. And as such, people choose to follow him.
When my cancer diagnosis came as a surprise one year after knowing Larry, I started this blog. Initially, it was just easier to tell the story one time to 100+ people, rather than 1:1, 100 times. In week one; however, Larry signed on to join my journey via the blog, and sent me private notes, prayers and love along the way….it’s been four years, and we no longer work in the same place, but I am pretty certain there are NO more than 10 people in this whole world that have read every single one of my 65+ posts. I suspect Larry is one of those 10.
I am one person in a sea of people he has touched. I can’t imagine a finer mentor and adopted grandpa and/or dad than Larry is to many like me. Likely, many of us not even knowing he was mentoring so many of us at the same time. Likely, he not knowing how many of us saw him as such.
You are a gift, my friend. Taking a pocket-size version of you on a journey these last 10 days has been an honor. Cheers to raising awareness, funds and a cure.
So again, I repeat. Be clear, ALS! Pocket Larry is indeed an original, and we have his back.
love and light,
On June 27, 2015 the St. Louis Walk to Defeat ALS is being held in Forest Park. Please join the team to support our friend, Larry Tyler.
#PocketLarry #outrunningALS #ALSWalkSTL
Larry does free weights and prep for upcoming USO MudRun. Thanks, Sarah of Gold’s Gym.
My Loubell protecting Larry.
Can’t help but plug the MU J-School. Might have gotten me the job. 🙂
Zumbathon for Autism at LivRite. Lead teacher, Mikadya, was diggin’ your dance moves.
Love a Spring ride on the road bike. Next time wear your Cards hoodie to match my newly wrapped handle bars.
Business meeting at St. Louis Bread Co. with colleague, Steve.
Checking out the competition. No private jet this time. Just my Jetta.
Post book club discussion re. the character of son as protagonist.
Helping me teach Consumer Behavior (MKT-231) at Southwestern Illinois College.
St. Louis Earth Day 2015, Forest Park/Muny Pavilion.
Strolling with Franciscan Sister Monica at the Missouri Botanical Gardens.
Our Journey Began.
no caption needed.
My friends, Doug and Alexis, take Larry to see a gorgeous CT Summit on the bike.
Your former bad ass SAL marketing/creative squad at national TV/Radio/Signage launch of ‘Savings Made Easy’ campaign, 2010-2011+.
Taco Bell cashier lovin’ Larry.
Joining me at United Church of Christ Church. Guests always welcome.
Jessica, UK student, takes you via iPhone to Keeneland’s Spring Meet, Lexington, KY.
My friend, Todd, takes Larry golfing, The Highlands of Elgin, IL.
Book club. You get to pick the next choice.
Earth Day STL, Ren Faire representatives.
Checking out more competition.
O’Fallon-Shiloh, IL Chamber of Commerce supports Larry!
Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neuro-degenerative disease that affects nerve cells in the brain and the spinal cord.
A-myo-trophic comes from the Greek language. “A” means no or negative. “Myo” refers to muscle, and “Trophic” means nourishment-“No muscle nourishment.” When a muscle has no nourishment, it “atrophies” or wastes away. “Lateral” identifies the areas in a person’s spinal cord where portions of the nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening (“sclerosis”) in the region.*
** https://www.facebook.com/outrunningALS?fref=ts, outrunningals.com